Thursday, February 18, 2010
avalanche, veux-tu m'emporter dans ta chute?
I've been in there about 5 times in the past week; I've been having horrible hot flashes that make me feel like my bones are boiling, sending a very uncomfortable fizzing sensation through my muscles. I get so hot that I get goosebumps, despite having no measurable fever. I'm frantic with worry and sadness, not sleeping well, nauseated, downcast, miserable. I've spent about 80 bucks in the past week on medication and herbs trying to get my body back to its normal miserable state. seriously, I can deal with just fibro, but this endometriosis and pseudo-menopausal crap are grinding me down.
Lin, the owner of the herb shop, was asking me about my health. she knows what she's selling, so she can tell from my purchases that I'm not the average 30 year old. I was trying to give her the short rundown and somehow ended up giving her the whole life story.
I don't give myself enough credit. I really don't. between the culture shock of the South's suburbs and my brother's attempts to molest me and then getting sent off to a brainwashing lockup and force-fed lithium for years, I went through more hell in my early teens than most people do in their whole life. and shit didn't even stop then. my life has been an avalanche of poor health and poor decisions made from an inability to plan for the future for most of my adult years too.
I've had a hard time being around people lately. I'm ashamed of my inability to keep my composure. I am constantly afraid that the few friends I have will turn their back on me, that they will be sickened by my neediness if I ask them to keep me company when I am sad or scared or feeling self-destructive. I have been hiding in my apartment for weeks, watching hours of downloaded tv, sticking needles in my feet and hands to keep from cutting myself. I schedule one or two social events a week and try my hardest to put on a brave face.
I am fragile. I am crumbling. but I have to believe that I am not broken past all hope of mending. as much as I want all this pain and fear and anxiety and sadness to be over, I'm not done living yet.
I just have to hang on a little while longer. and then a little more after that.
Sunday, February 14, 2010
these past few weeks, I've felt like I'm running on a giant hamster wheel, constantly tripping and falling down and skinning my knees and palms, busting my lip. I feel like a giant bruise emotionally.
I should have broken down and called my shrink. she was out of town and I didn't want to bother her, but she told me to call if if I wasn't doing well, and fuck. this past week has been one of the worst I can remember.
hindsight is 20/20, right.
Wednesday, February 10, 2010
cheer up, honey (I hope you can)
I don't think I have ever missed anyone this intensely. not and still believed that they were coming back.
please come back.
Tuesday, February 09, 2010
fail
I'm so hormonally overloaded it can't possibly make it worse, right?
I'm ok with my boobs growing, but I can't afford new britches, so let's hope my ass stays the same size...
Thursday, February 04, 2010
consolation prize
Friday, January 29, 2010
Thursday, January 28, 2010
I never saw so many tigers
the ultrasound didn't show anything. I spent 5.5 hours at the hospital and eventually walked out. I got tired of being shut up in a small dirty room to panic. they could not tell me what to do next. I'm certainly not letting them cut me open to look around. they don't know what's wrong with me, why I feel this bad, and they just didn't seem to care. I'm not doing this cos I enjoy being on narcotics. heroin would involve jumping through less hoops, I am sure, and the end would come a lot faster.
I'm too tired for this: separation anxiety combined with increasing desire to avoid social contact. constant suicidal thoughts. I hate myself. I want to cut myself. I want to punch walls, to bang my head on the ground and scream. I can't stop weeping. I can't get my feet warm. loss of appetite. dysphoria even a brisk ride on a sunny day can't shake. anorgasmia.
I won't go back on meds. I am certain if I can figure out what is wrong with my uterus and narrow down a treatment strategy, this horrible emotional turmoil will resolve itself. I am just getting impatient. I cannot explain; you would not understand. this is not how I am. I'm losing my religion. I'm at the end of the rainbow and my rope. I kneel in the night before tigers that will not let me be. I never saw so many tigers.
Monday, January 25, 2010
I'm waiting for the time when I can be without
the things that used to comfort me just don't anymore.
Wednesday, January 20, 2010
and I want you to notice when I'm not around
here's the thing: maybe I was in so much emotional pain that it just spilled over and became physical pain. then again, maybe I think I deserve to suffer. maybe I think that I have to be in pain in order to be loved. maybe this physical but invisible manifestation of pain is the only way I could get my parents to admit how badly they fucked me up. maybe it's my body screaming out I don't deserve this and no-one is listening. maybe after a decade of nightmares and self-hate and cutting and burning and screaming bloody hatred and rage into the big empty space where my lost personality- the person I was before I was made sick- used to be, maybe it just built up and shorted out and left me with these endless aches.
maybe if I can stop believing that I am sick I will stop being sick. I've been told I was sick and broken since I was 13. I don't even remember what it felt like before, to feel safe and coherent and cohesive and loved and accepted.
I wish I believed in unconditional love. I wish I believed that I will be ok.
I am terrified of what is growing inside me. I am terrified of finality. I am afraid I will never be wanted again, that I will never be touched by someone who desires me. I have so internalized these years of rejection that now my body is rejecting itself.
how do I stop
how do I feel whole
Tuesday, January 19, 2010
Love and Monsters
Sunday, January 17, 2010
Saturday, January 16, 2010
I am humiliated at all times. I have no emotional control. I have no filters. I can't pretend to be ok. I can't keep my heart off my sleeve. I can't keep my feelings from being hurt by minuscule things. I don't know how not to be a greedy, grabby, clingy, emotional vampire sponge monster.
I don't think I will ever rise above this.
I don't believe in the future being better. I don't think I will ever be anything but scared and alone and in pain. no matter how many painkillers I take it still hurts. I almost overdosed last night because it hurt so bad and I just kept taking more and it is never enough to make it stop.
I wish it had been me instead of Liza.
Wednesday, January 13, 2010
there is no-one what will take care of you
there is something horrid and out of place in my body.
I need an MRI. I can't stop imagining this horrible evil dark sludgy teethy gnawing thing growing inside me. wishing me harm. it doesn't belong there.
then again I don't want to know how bad it is. if it's adhering to my organs too much then they would want to burn it off. I have no-one to take care of me if they cut me open. I don't want to go through the county hospital, with their endless lines and infection filled waiting rooms and below standard quality care.
I am giving Chinese herbs a few more months. after that I don't know if I will have any other option besides surgery if it keeps getting worse every month.
I am scared and I am alone and I feel disgusting and dirty and foul and broken and I don't want to be here.
Saturday, January 09, 2010
proportions
After taking a year of Herbology classes that focus on learning around 300 of the most frequently used herbs in the Chinese Materia Medica, I've finally started a formulas class.
Putting together a formula is like organizing the government of one of those epic historical simulation computer games. there's an emperor, who dictates the main action and purpose of the formula; below him is the minister, who supports the emperor by either having a similar function or by addressing a second, coexisting symptom. the emperor and minister generally have the highest dosage range in the formula. at lesser doses are the assistants and envoys; the assistant can reinforce the actions of its superiors, it can reduce their unwanted side effects, or occasionally it can have an opposing effect when the disease has a complicated manifestation. the envoy focuses the actions of the formulas on a specific area of the body, such as the throat or the eyes, or else "harmonizes" the formula, sort of like taking the rough edges off. licorice root seems to be the most common envoy- it's very sweet and can make a particularly nasty potion a bit easier to get down.
sometimes the roles of each herb can be unclear: it's easy to pick out the emperor when it's dosed at 60g and everything else is 15 or 6, but certain herbs might be the emperor even if their dosage is small. wild ginger, for example, is an extremely warm herb that is used for severe chills with copious thin mucus; it generally is not dosed higher than 3 grams because it is so warm and drying. in a formula with wild ginger dosed at 3 or 4 grams, it will serve as the emperor even when the other herbs outweigh it by far.
despite the overall Confucian nature of herbal hierarchies, this last fact strikes me as rather Marxist- from each according to his ability, right?
In the past few months I've developed a fairly broad and varied group of friends. some of them are like me and have a lot of free time; some of them work way too much. the few people that I think of as my closest friends all fall into this latter category. I rarely get to spend time with them, but when I do, it means a lot more to me than when I hang out with people I see every day. their presences in my life are the most important, despite the fact that I might see them for only a few hours a week, or even less. My best girlfriend from back home and I rarely get a chance to sit down and talk on the phone for hours like we used to, but she's still my best friend. I can't remember the last time I got to spend a few hours with my closest friend here, but the twenty minutes every couple days and the waving at each other from our neighboring apartments' windows mean the world to me.
if you can't see the metaphor here, well, I don't know what to tell you.
Sunday, January 03, 2010
"I'd rather be working for a paycheck than waiting to win the lottery"
before:
after:
and that's pretty much my plan for the year. just to let things be what they are. not to fly too high. to want less. to be happy with what I have.
Saturday, January 02, 2010
it only comes out after about 6 drinks, this demon. when I'm tired and hungry and way too drunk. all the bile I build up in the course of a year comes pouring out and I wake up horribly sad and ashamed and can't remember what I said to ruin everything.
I've told so many people I loved that I hated them while in the grips of this madness.
there's a reason I don't usually drink that much. it's not a matter of control, it's that I can't predict what will rouse this bleak hateful thing from where it's been sleeping. once it was because Dumbledore died. once it was because Matt looked at Stacy Like That. last time, I wish I could say. I was having such a wonderful night and then the hole in my head starts and I woke up with everything in pieces.
this is not how I am.
Saturday, December 26, 2009
boy, those wings are made of wax
I went to my doctor and got on pain pills after spending Thanksgiving with gritted teeth. nothing real serious, just Tylenol with codeine. still, it takes the edge off, and it sure was a sharp edge. I'm hoping this new set of Chinese herbs I'm on will make an improvement in the next couple months. I can't stay on opiates forever. I'm already anxious as hell about how messy it'll be when I decide to go off them. I had a bit of trouble getting another set of refills before I went to Memphis for the holiday, and just a day on half doses had me ready to fall apart.
I'm sitting in bed in my old room. looking out the window at the same puddle of yellow under the same streetlight as all those other Saturday nights, alone, bored, miserable. I could be with my favorite cousins and aunt at my grandfathers' house, but I just don't feel well enough to keep my composure, despite the drugs.
The first three weeks of the month were brilliant. literally, filled with an almost blinding light just coming out of everything and glinting in every puddle and shop window and blazing out from chinks in the clouds. I had a lovely birthday, the best I've ever had. I threw a party and people came. half a bar, taken over by people who like me. I made it through finals, passed everything, even Anatomy. Hell, I made a damn hundred on my Herbs final. I celebrated the solstice with the people I love the most. then I was riding high, grinning the whole way to the train, even the whole plane ride. too high, I guess, cos the second we landed I crashed like hell.
I'll be out of here soon, back to my cozy apartment and my rumbly cat and my familar things. back to bountiful, if dry and clanky, heat, back to not having to be carted around in my dad's oversized SUV, back to my bike and my friends... a week left before class starts, a week to spend Xmas money in thrift shops and on hair product and to spend time reading gratuitous fiction at the coffee shop...
I'm still working out what my New Year's resolution will be this year, if I have one at all. I think maybe last year it was just "to be happy." I think this year it might be "to want less." or "to believe in happy endings."
Until then, it's all about happy middles.
Monday, November 23, 2009
it's a ritual sacrifice, with pie
this week we are having an orphan Thanksgiving and I'm so excited I can barely sit still. I was playing D&D for the first time last Friday with my neighbors and we were talking about how Thanksgiving and Christmas make the first part of winter bearable. then it's January, and the Super Bowl just doesn't do it for us, and we are miserable. so sometime next year, when it's dark and minus 3 out, I'll go over to the gaymers' and make pie and roast a beast and we'll offer up a libation to the Winter gods and hope that spring comes early.
here's hoping.
Wednesday, November 11, 2009
sticking a needle into Heart 9 is pretty painful, but it's a pretty fast way to clear the heart-pounding, breath-taking anxiety of a dark-too-early-wolves-are-coming-out November evening. it sure beats heating a knife on the stove til it glows and taking off a few layers of skin with it.
a friend from Back Home came in town a few days ago and we met up at the coffee shop for awhile. he's the exec chef at a lodge out in Big Sky, Montana and he's spending his off-season vacation cooking at a couple different places here. I'm a little jealous, honestly. I miss cooking, the bustle, the "stillness that underlay the din," the feeling of for once in my life being graceful as I pirouetted and sidestepped from salamander to deep-fryer to grill to my station and then over to the reach-in and around to plate a dessert a salad a special app ready to go on table 12 ok let's fire fire fire... still, my life is quieter now and I'm trying to be content with what I have.
comparing notes on friends from our high school, I realize that I am one of the only kids I know who went through Second Chance and is actually over being crazy. I was caught on that hook for years. it's hard to shake that label when you get it over and over from doctors and parents and friends. it's hard not to become what people expect you to be. I know I moved here to start over, 4 years ago, but it took me until last fall to really let go of that part of my identity. I mean, I'm plenty weird. I'm eccentric as hell, but I'm not afraid of myself anymore.
when the pain gets intense at the end of the day and I am alone I still look forward to this life being over, but I have so much more I want to do. I want to fix people with needles and herbs. I want to move someplace warm and raise goats. I want to learn to make love stay. I want to believe that the joy will outweigh the pain.
Today I listened to the new Lady Gaga song about 50 times. it seems to help.
so does remembering summer.
Monday, November 09, 2009
but am I?
we're well into autumn, with just over a month left before the shortest day of the year. as the light begins to decline the respites from pain grow few and far between. I'm trying to come up with better coping mechanisms for Incipient Winter Doom. I got a light therapy box, a shit-ton of vitamin D, and I've been ingesting a ridiculous amount of anti-anxiety/depression/pain herbs, both Chinese and European.
I have a tendency to let myself slip too far down into the Black Dog hole. I have a tendency to let the physical anxiety from consistent high pain levels create mental obsessions over things that are out of my control. I confuse a desire to hurt less with a death wish. I forget how much better things are when it's warm outside.
Pain is a time warp. It's long-term memory damage. It's being forever stuck in the present. If I were more than just a lazy Buddhist, I'd be ok with it. instead I think maybe there's such a thing as too much mindfulness. sometimes I hurt so much that it gets hard to breathe.
Pain is an endless rick-rolling and I can't Force Quit.
Until April or May, then, the best I can do is turn on my light-box, take my vitamins, drink my potions, hope that Corydalis yanhusuo doesn't tolerate too rapidly, and try to fill my life with as many distractions as possible.
Until April or May, I'll dig my toes into the clay and keep pushing this heavy, heavy rock uphill.
(and keep watching House.)
It is during that return, that pause, that Sisyphus interests me. A face that toils so close to stones is already stone itself! I see that man going back down with a heavy yet measured step toward the torment of which he will never know the end. That hour like a breathing-space which returns as surely as his suffering, that is the hour of consciousness. At each of those moments when he leaves the heights and gradually sinks toward the lairs of the gods, he is superior to his fate. He is stronger than his rock.
Monday, May 25, 2009
Poem for Monday, May 25, 2009
by Katie Ford
A pattern on the back of my eyelid coils like a fingerprint, I made
a mistake, it is not my own. The blood up between my eyes, I can’t see,
I sit between people, between pillars of the cathedral between
which the immaculate spreads her blue wing-sleeves into as much sky
as there is. Small blue lights edge the church and the eyeless Christ hangs,
his sockets darkening into shaded tombs. Darkness coiling,
my eyes coiling, a wind with sand in it scrolling up and down
a body, hiding that body until it could be anyone, and is.
Even whom I do not live with I live with now. Don’t say I don’t
speak to you: I speak to you.
Friday, May 08, 2009
nights like these, sad songs don't help
We left when I was 9, and I have no way of saying whether I would still have gotten so low had we stayed, but I am inclined to blame the suburban South for the seeds of my problems, if not for their roots.
Sure, this past few years' state of perpetual exhaustion has put out a lot of my angry heart-fire, but
it's left me terribly and bitterly alone. I try to make peace with it, but I sure do miss the camaraderie of going out to a show with a roomful of kids I knew and getting hammered together, pressed up tight against the stage, getting sloshed with beer, singing along at the top of our lungs, feeling every word.
I miss wanting to live.
Sunday, March 08, 2009
progress, not perfection. yeah, right.
my Fundamentals of Chinese Medicine class seems insultingly easy to me, but that might be, again, because I have spent so much time researching my own symptoms. This is one of those ironic circumstances where it's actually been beneficial for me to have been sick for so long.
I'm struggling hard in Acupuncture Points and in Anatomy. it's draining enough just to be physically present in these classes, and it's rare for me to feel up to studying in my free time. I tend to want to engage in activities that pull my mind away from my body, like 30 Rock marathons or cuddling with my sweetheart.
being in a relationship with someone who is emotionally stable and physically healthy is much more difficult than I would have thought. I am constantly battling with feelings of low self-worth and even paranoia. I am terrified of the prospect of his leaving in the fall for graduate school. I think I rely on him far too much for comfort, but I am in so much pain and he makes me feel so happy, when I'm not battling with my own mind. there's just so little that makes me feel ok. even then, being around him is acutely painful sometimes. I worry that he will lose interest in me because of my physical limitations. I resent him sometimes for never really having been alone, for having had things so easy. I envy his health. I fear that if he does leave in the fall, I won't be strong enough to handle it. I find myself thinking that it will be easy for him, that I'm just another girl in a long string of girls, easily replaced.
I'll be relieved when it's May and he hears back from the school's he's applied to. I'm steeling myself for him to leave, but until I actually know, this limbo is killing me.
I want to believe that the universe has sent me everything that is in my life right now for a reason, but I can't. I just look back at the constant up and down of my life and then I look forward and all I see is more pain. there's no horizon, just an endless sea of churning waves, and I am so tired of treading water.
Monday, February 16, 2009
Poem for Monday, February 16, 2009
by Gary Snyder
The years seem to tumble
faster and faster
I work harder
the boys get larger
planting apple and cherry.
In summer barefoot,
in winter rubber boots.
Little boys bodies
soft bellies, tiny nipples,
dirty hands
New grass coming
through oakleaf and pine needle
we'll plant a few more trees
and watch the night sky turn.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Sunday, February 08, 2009
I don't want to say I'm suicidal. let's just say I'm getting tired of living like this. school is so interesting, I have so many kind and loving friends, and I have the most wonderful boyfriend I could imagine. it's all tainted by the incessant pain. I look in the mirror and don't understand why I even have any skin left. I feel like I've been flayed.
I don't know how I go on.
Monday, January 26, 2009
Poem for Monday, January 26, 2009
by Pablo Neruda
Here I came to the edge
where nothing at all needs saying,
everything is absorbed through weather and the sea,
and the moon swam back,
its rays all silvered,
and time and again the darkness would be broken
by the crash of a wave,
and every day on the balcony of the sea,
wings open, fire is born,
and everything is blue again like morning.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Monday, January 12, 2009
Poem for Monday, January 12, 2009
by Charles Simic
The fat sisters
Kept a candy store
Dim and narrow
With dusty jars
Of jaw-breaking candy.
We stayed thin, stayed
Glum, chewing gum
While staring at the floor,
The shoes of many strangers
Rushing in and out,
Making the papers outside
Flutter audibly
Under the lead weights,
Their headlines
Screaming in and out of view.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Monday, January 05, 2009
Poem for Monday, January 5, 2009
by Richard Blessing
Dr. Nichopoulous was saying, Come on, Presley,
breathe for me, but you were happy. You'd played
your last request. Snow settled around you
like a thousand paternity suits. Ice
filled the island trees. You had gone farther
than a gossip magazine. You planned to name
your shadow for the first American to say,
I never heard of him.
Presley, you always breathed for me,
rock-bellied, up from Tupelo, a place
pastoral enough for elegy. Now one of us
is dead. Tender as Whitman's lilac sprig,
I leave these plastic flowers in the snow.
What perishes is only really real.
I twist the dial and you are everywhere.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Tuesday, December 23, 2008
Poem for Monday, 12/22/08
by Dan Gerber
You return home
to find your house no longer there.
The trees have grown back
and the toe of a boot you received for Christmas
protrudes through the loam of your floor.
The door you locked in the morning
is the space between twilight
and the serialized stars,
and your wife and children,
their wings extended,
circle the treetops
and sing indifferently of what you were.
Sunday, December 21, 2008
roast beast
wash two baking apples (I used Honeycrisp), core, and slice into half dollar sized pieces. mince 4-5 shallots or one small purple onion. mince or press one large clove garlic. combine in bowl with 1 tb dijon mustard, 2 tsp balsamic or cider vinegar, 1 tb each dried rosemary and dried sage, and 3 tb olive oil or bacon fat. add lots of fresh ground black pepper and a pinch or so of salt.
rinse and pat dry the pork loin. pull off a large sheet of foil and lay it shiny side up in a large baking dish, then place the meat on top. sprinkle with salt and pepper.
use a very sharp knife to cut slits in the meat about an inch apart, a few inches deep. stuff the apple mixture into these slits and then pack the rest around the meat. pull the foil over and fold the ends so it stays sealed.
roast covered for about 90 minutes, then open up the foil and roast another hour or until the meat is at 165 degrees with a meat thermometer. I left it in too long, about 3 hours, but it didn't get too dry.
for gravy:
pour off all the juices and apple pieces into a saucepan and boil until it is reduced to about 2 cups. in a small bowl add a few spoonfuls of the juices to 2 tb cornstarch and blend til it is smooth. pour into the saucepan, add a few spoonfuls of bacon fat or butter, and boil until it thickens.
Wednesday, December 17, 2008
exceptionally dorky post
So far:
I'm feeling pretty ambivalent towards OSC. it's not that I didn't enjoy the book, it's more the same thing I felt on reading the fourth and fifth books in Asimov's Foundation "trilogy." The novelty just gets more and more dilute. hard to explain, exactly. plus, dude is a Mormon and I get way too caught up trying to suss out his evil LDS anti-gay agenda.
this, however, was effing brilliant. ever since high school, when I read the Name of the Rose, I've been partial to any novel that takes place in a medieval monastery. or hell, anything remotely related to that millenium. for the first 5 or so pages, I just figured I was reading a historical-type novel about medieval monks that takes place in a in a parallel universe. except then I realized that in this particular universe, they've had rocket ships for 3000 years. there was some sort of self-inflicted technological mass destruction and since then, all the philosophers and physicists and tech wonk geniuses have been shunted into a monasteries called "Concents." like concentrations camps, I guess. the plot and backstory just get more and more mindbogglingly convoluted and brilliant til at the end you've got alien ships from parallel universes, time traveling, and of course, a rather adorable love story.
I know Christopher Paolini is a prodigy who wrote the first novel in this series at the age of 15, but I can't stand his style. he's just completely unoriginal. there's very little in his novels that can't be traced to Tolkien or Robert Jordan or Terry Brooks or other, less talented authors (anyone who writes a series with a TM in the series title, for example, like those godawful Dragonlance books. might as well just play D&D, FFS.).
and yet I keep reading. they aren't awful, just rather ponderously written and entirely too predictable. I imagine that if I were between the ages or 8 and 11 or so, I'd find them every bit as enthralling as I did Brian Jacque's books about intrepid warrior mice and *gasp* medieval-type monasteries run by good-hearted woodland creatures.
So, three books in 4 days. next up, post-apocalyptic teens with magical powers join forces with elves to flee evil into another dimension...
good times.
Monday, December 15, 2008
the older I get, the less things are black and white.
Poem for Monday, December 15, 2008
by Thomas R. Smith
In my dream I was the first to arrive
at the old home from church. Wind
and night had forced through the cracks.
I pushed inside, turned on lamps,
lit a fire in the stove. Frozen oak
logs stung my fingers; it was good
pain, my hands reddening on the icy
broom-handle as I swept away snow.
On Christmas Eve, I prepared a warm
place for my mother and father, sister
and brothers, grandparents, all my relatives,
none dead, none missing, none angry
with another, all coming through the woods.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Sunday, December 07, 2008
Monday, December 01, 2008
Poem for Monday, December 1, 2008
by C. K. Williams
It's very cold, Catherine is bundled in a coat, a poncho on top of
that, high boots, gloves,
a scarf around her neck, and she's sauntering up the middle of the
snowed-in street,
eating, of all things, an apple, the blazing redness of which shocks
against the world of white.
No traffic yet, the crisp crisp of her footsteps keeps reaching me
until she turns the corner.
I write it down years later, and the picture still holds perfectly,
precise, unwanting,
and so too does the sense of being suddenly bereft as she passes
abruptly from my sight,
the quick wash of desolation, the release again into the memory of
affection, and then affection,
as the first trucks blundered past, chains pounding, the first
delighted children rushed out with sleds.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Tuesday, November 25, 2008
for religion I tend to check "other" and write in "newtonian"
I remember scoffing when my undergrad adviser told me life didn't even begin to make sense til you turn 30. now I totally get what he meant.
karma is nothing more than Newton's 3rd law.
there doesn't have to be some great moral or spiritual breakthrough where I have a marvelous epiphany and then everything stops hurting and baby Jesus soars off with my heavy burdens.
just like there isn't a miracle cure for my fibro. there's x amount of things I can do that all contribute in a small way, but on the whole I am accepting that my life is going to be grueling for whatever's left of it and the important thing is for me to feel like I matter.
28 has gone by really fast. I went home for xmas, to Columbus for New Year's, got off some meds, watched Rosie die, got off some more meds, had surgery, started school. somewhere in there I learned a whole hell of a lot about what love really is.
I learned that I can't push myself all the way to my limits because my brakes aren't good enough to stop me right there at the end of my energy... I have to cut myself off BEFORE I am exhausted. physically or emotionally.
I'm learning to recognize how dangerous my "little sister syndrome" is- my need to be as tough and strong as everyone around me, even when they are healthy, strong neurotypicals. it's ridiculous. I'm frakking tough as hell. I don't need to prove anything.
I'm realizing that I have an aversion to studying for anatomy because I associate muscles and tendons with surgery- more pain. I am not entirely sure how to break this conditioning.
most of all, I am finally able to enjoy solitude again. I had way too much of it for a time, but now it's precious.
still.
Monday, November 17, 2008
it would be so nice
600 mg 5 htp at bedtime for serotonin.
100 mg theanine 2x a day for dopamine/GABA. (just got this today and I'm pretty optimistic. seems to help with the pain and brain fog.)
100 mg coQ10 in the am to help form ATP.
6000 mg fish oil divided into am/pm doses for insomnia, depression, dry skin, memory, etc etc etc.
2.5 mg Marinol (thc) 2x a day for pain and appetite.
plus a mineral supplement that is 4 horse-pills, plus Emergen-Cs, plus liquid chlorophyll.
hopefully this will help keep me functioning, as long as my dad is willing to pay for it all. shit ain't cheap.
Poem for Monday, November 17, 2008
by Olav H. Hauge
It's that dream we carry with us
That something wonderful will happen,
That it has to happen,
That time will open,
That the heart will open,
That doors will open,
That the mountains will open,
That wells will leap up,
That the dream will open,
That one morning we'll slip in
To a harbor that we've never known.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Wednesday, November 12, 2008
time spent in the shadow of the thing too big to see, rising.
I hope that if my illness ever gets to where nothing works to alleviate my pain and it's unbearable, the people who love me will let me go.
this is worth reading if you have read anything he wrote.
http://www.rollingstone.com/news/story/23638511/the_lost_years__last_days_of_david_foster_wallace#
Tuesday, November 11, 2008
but the drugs don't work; they just make you worse
days like this i don't think i'd turn down junk if it were made available.
Monday, November 10, 2008
Poem for Monday, November 10, 2008
by Juan Ramon Jimenez
Who knows what is going on on the other side of each hour?
How many times the sunrise was
there, behind a mountain!
How many times the brilliant cloud piling up far off
was already a golden body full of thunder!
This rose was poison.
That sword gave life.
I was thinking of a flowery meadow
at the end of a road,
and found myself in the slough.
I was thinking about the greatness of what was human,
and found myself in the divine.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Sunday, November 09, 2008
every year I go through a phase of denial about how badly the winter weather affects my health.
my pain levels have been around 8/10 for a week or so now and I've been having a hard time sleeping. the wind is about 25 mph most days so biking kicks my ass. I got a new cog for my back wheel so I'll be in an easier gear, and I'm hoping that will help. I have to accept that I am pretty much going to feel awful all the time no matter what and try to keep on.
I'm having a hard time getting any studying done because of my health. the pain seems to trigger the fight or flight mechanism in my brain so I have to battle a constant feeling of panic. zen meditation. I'm very intimidated by my 30 hour week schedule next semester. I'm sure I'll end up dropping something. I have to be patient with myself. accept my limits.
I know part of why I feel so shitty is from pushing myself too hard.
I feel like I am covered in 2nd degree burns from the waist down from being on my feet for a few hours yesterday. the SOFA art thingy was lovely but I ended up pretty disheartened by how exhausted and pain-stricken I was by the end of it. mermaid feet for sure.
dating seems to be working pretty well. it's hard for me to accept that someone would want to be around me when I am not feeling well. I have a hard time balancing out my sickness with the rest of me, which is in fact pretty awesome. it's been so wonderful to have company on my Bad Days, though. mostly I just have to focus on now, instead of on future endings.
I seem to have stopped thinking of myself as crazy about 2 months ago. it just ceased to be part of who I am. Now I'm just someone who is trying really really hard despite feeling like she's being burned alive.
a good friend from back home has a film at the Reeling festival and invited me to go see it. I'm excited, although a little afraid of homesickness.
a month left til my birthday.
Tuesday, November 04, 2008
Despite Obama's lead in the polls I don't have much hope that he'll actually win. The Republican war machine has its rusty claws way too deep in our country to be extricated with just an election. It's going to be rigged just like the last two.
I hope there are no riots.
Monday, October 27, 2008
Poem for Monday, October 27, 2009
by Roger Sauls
I couldn't see the nuthatch
or the wren as they raked alphabets
on the dull tin of the gutter.
This early, waking is a kind of weather,
a fog, perhaps, that you meet
on the way to the mind's next landscape.
So I set out for the yard, where grackles
threw pebbles in the air for joy.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Sunday, October 26, 2008
today it was a trip to the amazing, ginourmous, better-than-church downtown library. got a few books, one of which I am quite excited about.
I'm about two chapters into All in My Head, writer Paula Kamen's fantastic book about her battle with chronic headaches as well as that of others. So far it's a thoroughly well-written and researched read. it's inspiring for when I ever get around to writing my fibro book.
on her site there are a decent set of links, mainly dealing with headache. there's a very, very well-done list of Dos and Don'ts for relating to someone with Chronic Fatigue that made me want to cry and pump my fist in the air and then send it to everyone I know.
For example:
DON'T suggest that my symptoms might not be so severe if I didn't dwell on them, cater to them, give them so much attention, let them run my life. In fact, that is the very philosophy that led to the collapse of my health in the first place. I maintain what vitality I do have by careful attention to even small changes in my body.
DON'T suggest new supplements or treatments unless I have asked. Like most single dykes with the disease, I have experienced a drastic and terrifying reduction of resources. And like most women living on very low fixed income, I have had to evolve a highly refined and customized process for cost-benefit analysis. It has taken me years to fine-tune my regimen of supplements and foods. Yes, I am sure I would benefit from massage, blood tests, medical care, organic food, acupuncture, and chinese herbs, but I can't afford them. Unless, of course, you want to buy them for me. Classism and ableism go hand-in-glove, and in case you don't know, health care in this country is a privilege, not a right.
really effing brilliant. I've had so many well-meaning people tell me about some miraculous supplement that cured someone they know and it's getting harder and harder not to take offence. thanks, but when my life is a choice between eating enough to keep my weight up and taking yet another supplement, I'm going with food.
I've started taking St John's wort again in addition to 5-htp, what with the winter breathing down my neck already. I've been having bad bouts of depression at more or less the same time every day, the early afternoon. it's hard not to let it suck me in. getting my blood flowing helps, as does chocolate. it certainly does feel like a dementor attack...
time to watch Lost until I'm ready for sleep.
Tuesday, October 21, 2008
oh and
still feel pukey a LOT of the time. still having thumpy heart and tight chest. still having trouble sleeping.
but I'm not dying any time soon.
good lord willing and the creek don't rise.
ned called me "hipster bait"
Monday, October 20, 2008
Poem for Monday, October 20, 2008
by Joyce Carol Oates
This place up in Charlotte called Chuck's where I
used to waitress and who came in one night
but Elvis and some of his friends before his concert
at the Arena, I was twenty-six married but still
waiting tables and we got to joking around like you
do, and he was fingering the lace edge of my slip
where it showed below my hemline and I hadn't even
seen it and I slapped at him a little saying, You
sure are the one aren't you feeling my face burn but
he was the kind of boy even meanness turned sweet in
his mouth.
Smiled at me and said, Yeah honey I guess I sure am.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Saturday, October 18, 2008
props
I've been through a lot this past year and still managed to keep my self-destructive behavior in check. I was having a rough time for a couple weeks, and despite the fact that inside my mind and body was not a fun place to be, I still managed to take refuge in things that keep me safe. Meditating, biking, reading, watching Lost; I haven't gotten wasted or used someone else's body as a means to escape mine in more than half a year. which is definitely a new record for me.
I seem to have accepted the fact that my physical condition might never improve much more. it's a hard and bitter pill to swallow, and I sure do get dose after dose of it multiple times a day, but I am being brave. I am strong. I might cry a lot, but I'm nota drug addict. Every other person with chronic pain I've met was an oxycodone addict, but I want to have a life, and being on pain meds is a dead-end street. Hell, it's a Thelma and Louise style full on acceleration towards a cliff.
Lately, when my physical state becomes overwhelming, I try to tell myself "this is just one more thing you will be good at treating."
it helps.
but I sure as hell can't sleep for shit lately.
Monday, October 13, 2008
Poem for Monday, October 13, 2008
by Kay Ryan
If the moon happened once,
it wouldn't matter much,
would it?
One evening's ticket
punched with a
round or a crescent.
You could like it
or not like it,
as you chose.
It couldn't alter
every time it rose;
it couldn't do those
things with scarves
it does.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Sunday, October 12, 2008
the waiting is the hardest part
during my acupuncture treatment Friday my intern told me the clinic supervisor insisted that I go see a physician to get checked out. I looked at her and said "what could it be?" she shrugged and said "glands? cancer?"
so of course I've been totally freaking out for the past couple days, more than usual.
I'm fairly certain I have hyperthyroidism, because my grandmother had thyroid disease and I seem to have inherited a lot of her health problems, and because I have all the main symptoms. unexplained weight loss, nausea, hot flashes, heart palpitations, elevated pulse, joint pain, diarrhea, yeah... fun.
if that IS what I have, I'm still sticking with Chinese medicine and nutrition, because the western treatments involve burning out your thyroid permanently via injection of radioactive iodine or else taking medications that kill all your white blood cells.
I'm really, really scared. I have no fat left on my body and I feel very, very fragile. It is painful for me to sit on most furniture and my bedsprings poke me through the mattress pad so I wake up feeling bruised. I've been crying for three days. it's so scary not to know what is wrong and to feel so horrible.
and to go through this alone, without a close friend to cry on, with no-one to go to for comfort, it's almost unbearable.
all I can do is keep breathing.
I get my blood tested Wednesday.
Wednesday, October 08, 2008
profile
when I write it all out I think I come across pretty well. I sound downright awesome. hell, I totally fracking rule. so why am I still so sad?
I know I am pretty and smart and funny and caring. I try to balance all this out with the feeling of worthlessness I have left over from my adolescent traumas and from dealing with my sickness.
7 months of menstrual suppression and I have morbid PMS. I'm inexplicably sad. there's not much I can do but hole up on the futon with Dr Who, then spend all the money I will get from cleaning my boys' house on chocolate.
wait it out.
Monday, October 06, 2008
Poem for Monday, October 6, 2008
by Robert Hass
I've watched memory wound you.
I felt nothing but envy.
Having slept in wet meadows,
I was not through desiring.
Imagine January and the beach,
a bleached sky, gulls. And
look seaward: what is not there
is there, isn't it, the huge
bird of the first light
arched above first waters
beyond our touching or intention
or the reasonable shore.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Wednesday, October 01, 2008
take us apart and put us back together right
I've been listening to this song in particular a whole lot in the past few days. it seems pretty relevant to what's going on in my life right now, in a very comforting way.
Strange winds are blowing me down this way.
There's no prize in sight but the pain in my feet but I won't remember after tonight.
The clock turns red and the word on the street is that we are getting ready to leave.
Behind me I've forgotten to check all of the things that somehow now I don't seem to need.
Stepping over broken doors down in the street, all the chairs and tables lay on their sides.
We have to turn them over and stand them upright so we can leave them on their feet for the night.
So we can leave them on their feet for the night.
Take us apart and put us back together right, so we can leave on our feet in the night.
Monday, September 29, 2008
Poem for Monday, September 29, 2009
by Floyd Skloot
My brother thought they were freaks
of nature, voices fitting together
through some fluke of chemistry.
He said they might just as well
have been Siamese twins sharing
a heart or the Everly humpbacks.
My brother preferred Jerry
Lee Lewis and Chuck Berry.
He cackled at their antics,
battering mother's baby
grand with his fists when we
were alone and duckwalking
the hallway until our downstairs
neighbors hit the ceiling
with a broom. At night he worked
on his Elvis sneer while caking
his face with Clearasil.
I can still see my brother
rave as we rode four stories
up in the quaking elevator.
He offered me one frenzied
groove of Yakety Yak at the top
of his lungs when I tried
to sing. All I wanted was
his voice joining mine in
harmony. The song did not
have to be about faith in love.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Wednesday, September 24, 2008
I can never say no to anyone but you
I was raised in a pretty Christian household. My mom had me praying for Jesus to bring me a husband from before I was old enough to understand sex, and by the time I figured out the mechanics of it (thanks to a fascinating 4 pages in a Ken Follett novel) the world had already started to sour around me.
Somewhere around the age my brother started trying to pin me down, my best friend got raped. Everyone called her a slut and said she was lying. She started spiraling out of control and I was angry enough to go along for the ride. There was no protection, no guarantee of safety. Nothing but lies. Sex wasn't some beautiful prize, it was a power struggle, always with a winner and a loser.
We were 13.
I ran away at the end of the summer. I'd been on Prozac for a couple months, on and off, and this was back before they knew about the erratic behavior side effect. I went for a walk down to the river park and ended up camping in the woods with some older kids I'd bummed cigarettes off before. By the end of the first night I'd decided I might as well lose my virginity. It wasn't worth anything. It wasn't special. The guy was 19, and not gentle. I have no idea how he could have bought the lie that I was 15, because I looked about 12.
It was my first kiss, too.
It was like being told a secret so huge it ripped me apart from the inside.
The next day I limped to the picnic shelter restroom and washed up. Looking in the mirror I imagined myself somehow infinitesimally wiser. Powerful. Bitter.
Then, of course, I got sent off to long-term brainwashing camp, where I was forced to repeat over and over that I had had sex because I was a drug addict, in front of large groups of other inmates, as well as in front of my mother. Then I spent the rest of high school under hardcore vigilance. I spent a lot of time listening to the Cure's darkest songs, especially the Figurehead.
I will never be clean again...
My first weekend in the dorms at Rhodes, I went to a frat party with a guy, Adam White, who was friends with a girl in my dorm. We went "just as friends," since I'd just starting dating this guy Josh and was really into him. Adam got me really drunk-my second time ever- and took me back to his room and next thing I knew he was in me. I was so wasted all I could think was that Josh was going to be so hurt and that this wasn't supposed to be happening. When it was over I staggered into the shower and sat sobbing under the spray. I remember lying on the cement out in the middle of campus watching the stars reel overhead, and I remember Josh coming to get me and crying when I told him what happened. I couldn't understand why he was so sad.
I don't think I've ever not been fucked up about sex. I've had a lot of it, and some of it's been really fantastic, but most of it seems to have been the kind of wasted and sordid one-night stands you only have when you really hate yourself. I tried to convince myself that I was just empowered, that I could be liberated and deatched and in control or callous and cold-hearted, but really I just thought of myself as disgusting and used-up and corrupted.
I did a lot of things I am not proud of, especially toward the end of 2007, when my antagonism toward my body was at its hardest.
I've had this mysterious bladder pain for about 6 months now, which is also the longest period of celibacy I've had since I was 17. It's gotten to where I have actually resigned myself to never having sex again.
Part of me wonders if my subconscious and my vagina are conspiring against me.
Do I really think I deserve this? Have 8 months of therapy really not even made a dent in this mountain of guilt and shame?
Deep breath. I have two tests tomorrow, and I can't figure this out tonight.
Tuesday, September 23, 2008
Poem for Monday
For the Children
by Gary Snyder
The rising hills, the slopes,
of statistics
lie before us.
the steep climb
of everything, going up,
up, as we all
go down.
In the next century
or the one beyond that,
they say,
are valleys, pastures,
we can meet there in peace
if we make it.
To climb these coming crests
one word to you, to
you and your children:
stay together
learn the flowers
go light
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Friday, September 19, 2008
I got a flickr pro account and was looking at pictures from last year. compared to then I look emaciated.
I'm so fed up with being sick. I have a good day, then I overdo it and get sick again.
acceptance. acceptance. I might never get any better. I need to focus on being grateful for what health I do have. some days I have to chant to myself "at least I don't have lupus. at least this won't kill me."
I miss having a social life. I miss dating. it's been since April since I had someone cuddle me. I don't know how to talk to regular people anymore. all I seem able to talk about is fibro. being sick has consumed me and I don't know what is left.
Monday, September 15, 2008
Poem for Monday
Moving Day
by Jay Meek
Our lamps sit on the lawn
as though
we lived there we roll
our rugs into documents
of
nothing new this is our last
house before the river we are
leaving
our lives again our radio
keeps playing Music
for
the Royal Fireworks we are
drifting downriver farther
and
farther from it where
are we going into our own
voices
saying go back go back
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Sunday, September 14, 2008
por fin escampa
It's lovely to be able to spend time in my apartment reading and napping in bed without feeling a pressing need to Get Outside. Granted, it's pouring down rain and my bike isn't working, but the horrible urgent restlessness that has plagued me all summer has finally abated.
Bless you, Minor Bupleurum. The whole idea that emotional balance can be achieved by balancing internal organs makes a lot of sense to me, since the western/corporate medical idea of just treating the brain certainly hasn't done shit. (as a side-note, skullcap+marinol=total psychedelic za-na-nas, seeing trails, blissed out. I'm looking forward to doing more research with drug-herb interactions, since I will probably end up treating mostly chronically ill patients.)
I have a few chapters to read for my Clinical Counseling class, and some laundry to do, and meals to prepare for my 8 hour day tomorrow, so I'll have to venture out into the rain, but I'm pretty unfazed. I've been a cranky bitch for a while and it's a relief not to be so angry and frustrated and anxious, so I don't mind.
I'm finally starting to feel like me again. this goes beyond the number being unemployed and bored out of my skull did on my psyche. this is more that I am finally able to move the physical discomfort of my everyday life to the back burner, to minimize its window. yeah, I feel like shit. no, it probably won't ever go away. at least it's not so upsetting anymore.
Saturday, September 13, 2008
whew
So far, after two weeks, I'm pretty excited. half of the classes I am taking now are not super challenging, just a lot of review and rote learning. I haven't taken biology since 1997 and I never took anatomy. I am glad my school really emphasizes biosciences, because I hope to do a lot of research later on in my career. I still remember what mitochondria are and all that, so I am not reallt worried.
We've discussed yin and yang characteristics in several of my classes and it's been interesting to try to identify myself. I have come to the conclusion that I have excessive yin and almost totally depleted yang, probably as a result of being forcibly medicated in my teens when I was still growing. it definitely makes sense to me, even on a nutritional level. When I am feeling really poorly, I crave certain foods, all of which are very yang- I want hot, spicy, garlicky meats and chocolate, I want sunshine, I want to be warm and active. When I am feeling well, my natural personality comes out- I'm bubbly, excitable, exuberant, impulsive. When I feel bad, I am quiet and withdrawn.
I've done a few things in the past week to try to test this hypothesis, mostly eating more meat and only listening to upbeat music (according to Tony, my tai ji teacher, rap music is yang, so I have been pretty much exclusively listening to Jay-Z and Missy Elliott). I also decided to take a break from birth control and menstrual suppression, since birth controls add yin energy and I already have way too much of that.
I'm optimistic again. I feel surprisingly ok today, especially for a nasty rainy day punctuated by uterus spasms. I got some really cute skull & crossbone galoshes and some winter gloves, so I'm one step closer to being ready to ride in the snow. if it ever stops raining I will be able to start getting my new fixie put together.
It might take me slightly longer than I anticipated to finish grad school, hopefully no more than an extra semester. I have to accept my limitations, and keeping up with an overload is just not possible if I want to do well.
After an email inquiry I sent, the assistant dean is trying to get a disability support group going at school. I hope some of the more advanced students respond. I could definitely still use lots of guidance.
Monday, September 08, 2008
Fwd: Poem for Monday
by Rafael Alberti (trans. Mark Strand)
None of us understood the dark secrets of the blackboards
nor why the armillary sphere seemed so remote when we looked at it.
We knew only that a circumference does not have to be round
and than an eclipse of the moon confuses the flowers
and speeds up the timing of the birds.
None of us understood anything:
not even why our fingers were made of India ink
and the afternoon closed compasses only to have the dawn open books.
We knew only that a straight line, if it likes, can be curved or broken
and that the wandering stars are children who don't know arithmetic.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Friday, August 29, 2008
restore from saved game y/n
Good things have just been dumped in my lap lately. My parents decided they wanted to buy me a new MacBook and some school clothes. I sent an email out to my bike club offering my old linux box to the first taker, and Alex at West Town offered to trade me a bike for it, which is fantastic. My Specialized Globe has been way too big for me for a while, and the back wheel is pretty damaged from getting doored back in May, so riding has been hell on my knees lately.
Orientation for graduate school was Wednesday. There were a few people in my class I am really looking forward to getting to know, and the classes should be quite challenging. I was flabbergasted to win a small scholarship. I know I deserved it. I've been through a hell of a lot and it is going to make me a hell of a witch. (The herb room at school is SO Hogwarts.)
I'm trying to hold on to some confidence, but I'm pretty overwhelmed. I know there are a lot of people who expect great things from me, and I am afraid of letting them down. Still, I know I am a dedicated and capable student. I know that the past few years of perceived failure were necessary to make me re-evaluate the way I related to myself and to other people. I know that I am still the same person I was 10 years ago, and also that I am completely different.
I'm not fucked-up. I'm not crazy. I might suffer from a really unpleasant set of chronic health problems, but I am still a kind and loving person who has much to offer. Other people don't pity me; they are proud of me.
I'm still terrified. Mostly afraid that it will be physically too much for me. Afraid that I won't be able to pay attention, afraid that my smarts have vanished. At this point I know it's just a matter of being patient and letting this new role take hold. I feel a lot like I did 11 years ago when I started at Rhodes. The world just got way bigger and it's a little scary.
I'm using my scholarship money to build a new fixed-gear and get it pimped out for winter. I got a new iPod and a microphone attachment so I can record my classes, since my the nerve grafts in my hand have now started to extend into my fingers and writing may become extremely unpleasant. I had a meeting with the assistant Dean to make sure that I'll be able to get up and stretch and walk around the building if my fibro makes sitting still in class for 4 hours too painful. I get acupuncture for 15 bucks, and I will be getting as much as I can, especially this first month of class.
In a lot of ways I feel like I've been given a chance to start over, but not all the way at the beginning. I get to go back to where things went wrong with total knowledge of what I need to do to win and start from there.
Level up.
Monday, August 25, 2008
Poem for Monday
Birth
by Louise Erdrich
When they were wild
When they were not yet human
When they could have been anything,
I was on the other side ready with milk to lure them,
And their father, too, each name a net in his hands.
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Monday, August 18, 2008
wathcing mad max is making me thirsty
I puked twice, once on the way (about 2.5 hours from the meet-up point), once after we got there and I blew up the sleeping mat. I tried really hard not to be a whiny, cranky bitch. I managed to stay up and be social for a few hours. There was some lovely veggie chili and some singing around the campfire, but being the only person not drinking, I was bored and sleepy pretty soon after dark. Went to bed at about 10, slept fitfully with earplugs in, constantly woken by the bugs and the festivity and the dampness creeping into my pillow. I was almost delirious with fatigue when I left in the morning, around 11. The trip home through the suburbs was mostly bike trails, quite beautiful, and I was totally miserable almost 3 hours later when I got home. Too much weight for me to pull, especially on a one-speed.
I'm physically incapable of taking naps, so I spent most of the day yesterday in a haze of dizzy misery until I finally fell asleep around 10.
Today I have a brutal cold and am restless, but too wobbly to really move. I'm on my third movie of the day.
I want to say the trip was worth it for the time spent with friends, but I was so self-conscious about being a wet blanket that it was hard to relax, not to mention I was too out of it to enjoy the beautiful scenery.
Having a fragile constitution seems to make loneliness more painful because I barely remember what it was like to have Big Wild Fun, so I grab any chance I can get to hang out with my friends, even if I have to duck out early. I try to be mindful of how lucky I am to have all my needs met, to be able to walk and ride a bike, to live unassisted.
I saw a urologist and had a cystoscopy done. it was the singular most unpleasant experience of my life, rather like losing my virginity. I made it through my staring at this poster.
there's nothing visibly wrong with my bladder, so at least I don't have interstitial cystitis, but the doctor (who talked to me for under 3 minutes) just gave me the name of yet another specialist to see. I'm opting not to. I will just hope the pain goes away. Resign myself to it. Never, ever, ever have sex again.
Days like this when I am totally run-down it's hard to keep learning from all this. I just want to be comforted and I don't see it happening any time soon. I just have to keep on making it through a day at a time. Until what, I don't know.
Saturday, August 02, 2008
"brazilian" black bean soup
1 small yellow onion
1-2 big fat cloves of garlic
1-2 cups carrots, in bite sized chunks
2-3 tablespoons olive oil
1-2 bay leaves
2 teaspoons ground cumin
1 tsp oregano
1 can black beans, undrained
1 small orange
1 cup water or vegetable broth
salt and pepper to taste
Cut the onion in half, then into finger-thick slices, then line those up sideways and cut them into dice-sized pieces.
Heat a small saucepan over a medium-high flame and add the oil. When the pan is hot, slide in the onions, carrots and the bay leaves.
Meanwhile, mince the garlic. You can do this with the tines of a fork, mashing it into a juicy paste.
When the onions start to turn translucent with a little bit of brown, add the garlic and cumin and stir vigorously for about a minute.
Pour in the water and the black beans. Stir and cover, reducing the heat the medium. It should simmer but not boil for about 8 minutes.
Squeeze the orange into a glass, removing the seeds but conserving some of the pulp and add to the pot. Leave the pot uncovered so some of the liquid will evaporate.
Cook until the carrots are tender but not mushy.
Add salt and pepper until it tastes right to you.
Top with chopped green onions or sour cream, if you feel like dairy.
Don't forget the Sriracha, or better yet, chipotle Tabasco.
Serve over brown rice, polenta, (yellow grits), quinoa, or with warm corn tortillas.
You can add red bell peppers, corn, lima beans, substitute sweet potatoes for carrots, throw in crumbled smoked tofu, whatever...
Wednesday, July 30, 2008
how strange it is to be anything at all
There is something so purifying to spend hours cleaning, especially when you use nothing but peroxide, Citra-solv and peppermint Dr Bronner's. Peppermint's cooling scent soothes my constant summer headache and loosens my asthma-tightened lungs
It's not as effortless for me as it was back in 2002, when I first started doing green cleaning back home. I have to be especially patient because my wrist and hand are still very stiff and can't be used to do more than supporting and guiding of light weights.
My life has a pattern to it now, even if it's just as simple as wake up, go sit by the water and meditate for 25 minutes (I can't say I actually meditate for more than a few seconds at a time, but I sit in easy peace for the whole time) and then see where the day takes me from there.
There are disappointments and obstacles in every day, but I seem to have recovered a steady footing. It's as easy as taking a deep breath and knowing it's not the end of the world.
The urologist put me on an anti-spasmodic, and between that, the Marinol, and the tryptophan, I'm able to actually look forward to things again.
Monday, July 28, 2008
I went to the temple to do work practice. Sat for a while and was delighted to be greeted mid-sit by the nun's cat, who has snuck out of living quarters. The idea of being able to bring Tachi with me if I one day choose to live in a temple or monastery setting hadn't occurred to me and now I find myself already longing to take up residence there when my lease is up. I somehow doubt my parents would approve, so I'd have to work out a way to pay for my rent, but it's a lovely daydream to have.
Even after just two days of adhering to a regular practice I feel so much more at peace. it was
such a pleasant experience to chant the Heart Sutra (as unfamiliar as it is in Korean) and then to work in the garden for an hour. I learned so much from just weeding.
it's good to have hope again, to have a place to take refuge.
I was disconcerted by my complete inability to stop crying. I have been really emotionally worn out these past 24 hours, after overdoing it physically Friday and Saturday. After the service we had tea downstairs. One of the members struck up a conversation with me as we washed out our tecups, and when he noticed my distress he told me I could go sit back upstairs in the temple. I sat up there and sobbed for probably half an hour. Sometimes there is nothing else to do but sit and keep my pain company. I try not to judge it or let it overwhelm me. I sat and looked at the Buddha statue and let the pain flow through me.
I went back later in the day for the afternoon service, which is just one sitting meditation followed by the three refuges, chanting of Ma-um, and a question and answer session.
It has become very clear to be that the only way to take arms against this sea of troubles is by sitting still and doing nothing at all. My mind is over-run by monkeys and my body is falling apart. I can't go on like this.
Poem for Monday, July 28, 2008
by Eqrem Basha
Who is that bird singing on a branch alone
And where is its flock
Which is the plaintive song
And which is the season
That bird has a voice adept
At singing on a solitary branch
No friends no family
It has come to earth on its own
With a flute in its beak and anguish
Which is neither a wound
Nor a song
What is that mourning so near which belongs to us
Sing to us nightingale sing
Burke's Book Store
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Friday, July 25, 2008
mantra
It's taking a lot of energy and even more faith, but I am finally back in the center of my path, back to where can believe it.
I let things slip back, I neglected my heart, I forgot to gather wood for my campfire and the wolves came and surrounded me.
I am done letting the sickness win.
After some serious bike riding, and a lot of long talks with myself, my shrink, and my friends, and a couple of days of tryptophan supplements, I can finally see the path again. The shadows are lifting.
Yes, there is pain. There is weariness, loneliness, sometimes even deep sadness. But there is also joy, gratitude, and so much love. All these will arise, and all these will be swept away.
Best Critical Mass ever. Thank you, universe. I am being sent such blessings.
(this video sucks, but it's the only one I could find.)
Sunday, July 20, 2008
My heart is the same way. I want more than I can have, and always from the wrong person. It's very difficult for me to be happy unless I am busy all the time. I haven't really had a job for about 10 months and my mind is starting to consume itself. I spend way too much time fretting about being alone, about possibilities that never existed and never will exist, about being abandoned by people I need and love right now when I need them most.
I have to constantly stop and talk myself down. I burst into tears several times a day. I'm in so much pain from the lack of exercise and the possible interstitial cystitis that I am really struggling to keep my head above water. My pain is so urgent, so present, and I have little to distract me from it. I agonize about what people think of me because of how I am handling this.
Rationally I know that when school starts in a month my life will change drastically. I had been planning to start volunteering at the queer health clinic's thrift store, but it's become very apparent (especially after the grueling experience I just had this weekend at Pitchfork) to me that I'm not able to spend more than 5 or 10 minutes on my feet without a severe increase in discomfort.
I'm trying hard to find people to spend time with. When I can't do that I read at the lake until the horseflies drive me off. I try to remember to breathe.
I've lost my center. I'm alone and in pain so much of the time and my body stays in panic mode until I wear myself out.
God I miss riding a bike.
Tuesday, July 15, 2008
dog bless tudou
Kate: "I feel like such an idiot."
Angel: "A lot of that going around."
Kate: "I just couldn't... - My whole life has been about being a cop. If I'm not part of the force it's like nothing I do means anything."
Angel, still looking pretty beat up: "It doesn't."
Kate: "Doesn't what?"
Angel: "Mean anything. In the greater scheme or the big picture, nothing we do matters. There's no grand plan, no big win."
Kate: "You seem kind of chipper about that."
Angel: "Well, I guess I kinda - worked it out. If there is no great glorious end to all this, if - nothing we do matters, - then all that matters is what we do. 'cause that's all there is. What we do, now, today. - I fought for so long. For redemption, for a reward - finally just to beat the other guy, but... I never got it."
Kate: "And now you do?"
Angel: "Not all of it. All I wanna do is help. I wanna help because - I don't think people should suffer, as they do. Because, if there is no bigger meaning, then the smallest act of kindness - is the greatest thing in the world."
Kate: "Yikes. It sounds like you had an epiphany."
Angel: "I keep saying that. But nobody's listening."
Kate: "Well, I'm pretty much convinced, since I'm alive to be convinced."
Angel: "You know you don't have to be a cop to be..."
Kate: "I'm okay. - Anyway, I'm not headed towards another pillathon. - I'm very grateful. - I never thought you'd come for me, but... I got cut a huge break and I believe... - I don't know what I believe, but I - have - faith. - I think maybe we're not alone in this."
Angel: "Why?"
Kate: "Because I never invited you in."
Monday, July 14, 2008
Poem for Monday, July 14, 2008
So Many Things
by Guy Goffette
All winter you neglected
the strong red umbrella
let its ribs rust in the grass and mud
let the north wind crush the birdhouse
without uttering a word, you gave up
on the rose beds, the apple
that rounded off the earth.
By indigence or distraction you left,
let so many things die off
the only place to set your gaze
is on the draft slicing through your house
and you’re surprised, still, surprised when
cold seizes you from summer’s very arms
936 South Cooper
Memphis, TN 38104
(901) 278-7484
www.burkesbooks.com
Friday, July 11, 2008
it's been a rough couple of weeks since I had my hand repaired, but I just have to make it until September. just 6 more weeks.
I've been in the grips of a panic attack or surrounded by wolves or consumed by dread or whatever you want to call it for about a week straight. boredom and claustrophobia and pain and insomnia. incessant thoughts about self-injuring. trouble breathing. I can't stop crying.
I make myself leave whenever I can. usually I go to the lake. I read, I cry, I go home and pace and go back out. I am on the verge of explosion.
at least I have the internets again.